Just got the go-ahead from Dr. Langford to start Rituximab

[ArlaMo]

Wish me luck in getting insurance approval! My bronchoscopy was clear of infection, so Dr. Langford called today and said we should go ahead with getting me approved. Hoping and praying it works better than the 10+ months of cytoxan and that I have tolerable (or NO!) side effects.

[elephant]

You will get it, like Sangye stated Dr Langford will help you. Glad you have no infection! Good luck!

[Sangye]

Yay! I hope you can start it soon.

[marta]

Woo hoo!! I too just got the call and am going in for my infusion on March 10. I'm so stocked and can't wait to get off the cytoxin. I too am on it for 10+ months as I got diagnosed in May... looks like we're on the same Weggie train. Just out of curiosity... did you get the H1N1 shot last fall with the rest of the world? Just trying to settle my curiosity.

Best of luck with RTX.

[DEE]

GOOD LUCK to you both its great to gear good news for a change DEEx

[Brooke]

Good luck!!!

[ArlaMo]

And now, we're in the hurry up and wait for the insurance company mode. UGH! Just want to get it done!

And Marta, I'm not sure if I had the H1N1 vaccine, but I'm thinking I didn't the fall that I started getting sick. Not sure though - my brain leaks info like a sieve lately!! I'll have to ask hubby if he remembers.

[BrianR]

I am sure this has been asked before but...has anyone who has undergone an RTX infusion also been told to stay on CTX up to the day of the infusion? Just curious as this is what Marta has been told. She is to stay on CTX until March 9 and her RTX starts on March 10.

Thanks!

[ArlaMo]

Brian - I asked that question of Dr. Langford yesterday and she told me to continue taking the cytoxan til about 2 days before my first infusion.

[snooz23]

Good luck~ I am much happier w/ RTX than I was on CTX. I also see Dr. Langford and did CTX for just 4 months....was on Imuran for maintenance and had a relapse w/in 3-4 months. My second infusion was in Jan. and just had my follow up scan, blood work--all looking good. Most importantly, I FEEL much better on this. No adverse effects to speak of.

I didn't get NIH1 last year but I did go w/ it this year.....I have never taken a flu shot, etc. in my life, but figured there is no time like now to begin....in the end I feel like the risk of getting infections (I do have 2 small children and work in schools) out weighs the possible what if's....so I went for it.