Vancouver, BC, Canada?

[kulharv]

hi moyan,

i have a rhuemy, Dr Michael Ramsden, in new westminster right across from Royal Columbian Hospital. I have been going to him for 2 yrs now and was diagnosed 1 yr ago today with WG. He has been very good and on top of things with me. I also have a respritory specialtist in surrey, Grant McCormack. both docs are friends and i have been very happy with both of them. My ENT specialist.....well all
I can say is that I need a new one!

If you want I can forward the phone#'s for both docs. My WG has been active and I have just finished 4 rounds of RTX and am tapering off the prednisone from 50 mg and am currently at 35 mg.
My rhuemy has several patients with WG and is associate, I think his wife, also have several WG patients. From what I have seen, he nows about the treatments and gets the ball rolling asap. I was also was on a IVIG (immune globulin) treatment as I had bleeding in my lungs.

Let me know if I can help in any way.

thanks. Harvi

[Sangye]

Harvi, our dear Moyan passed away some time ago. She was a real treasure.

[kulharv]

thanks sangye. I feel horrible! I wish that I could have done something sooner.

take care and once again thanks for letting me know.

harvi

[germaine]

Hi Jolanta, I haven't been on this group in ages, and it is nice to see the progress everyone seems to be making and nice to see your picture. We now have a support group in Nanaimo. The Next one will be March 10th at 2 pm. It is fairly close to the ferry and I would pick you up and bring you to the group, or send my husband as I might be setting up the room for the meeting. The contact email for our group is vivasculitis@gmail.com. I'm not the monitor, but you could ask Jim for my info. We meet every second month on the 2nd saturday of the month.

[Al]

Hi Jolanta, I haven't been on this group in ages, and it is nice to see the progress everyone seems to be making and nice to see your picture. We now have a support group in Nanaimo. The Next one will be March 10th at 2 pm. It is fairly close to the ferry and I would pick you up and bring you to the group, or send my husband as I might be setting up the room for the meeting. The contact email for our group is vivasculitis@gmail.com. I'm not the monitor, but you could ask Jim for my info. We meet every second month on the 2nd saturday of the month.

Hi, Germaine--it is nice to know another Weggie in the area (I am across the border, but can nearly--but not quit-- see Nanaimo)! Can't promise to get to regular social events, but you never know...!

Al

[jola57]

Hi Germaine, I look forward to meeting with you all in March, it's a date
Harvi, how were you approved for RTX, my Rheumys says I have to pay for it. It seems my GFR is 35, so there is a bit of a panic that mtx is not working so RTX might be next

[pberggren1]

Jolanta, what is GFR?

[me2]

Hi Jolanta,
I see you live in Canada. Maybe this article pertains to you:

ROCHE | Approval of first-ever medicine for rare blood vessels diseases offers hope for Canadians