Meet up

[Gwenllian]

Hi!

I think it would be great to have a meet up, and actually meet other people with Wegeners!

Is anyone else up for it, and if so, where and when?

[andrew]

Canberra, Australia. Any time you like

Seriously though, I've never, ever met another Weggie face to face. I've spoken to someone on the phone that has WG but that's as close as it gets. I think it would be wonderful to actually meet someone that has the same thing.

Perhaps some day when we have zillions of members we could all have a conference somewhere. Until then, keep an eye out for someone in your area and perhaps arrange to meet up for coffee and pills

[Marcy]

I'm new to this group but am wondering if any of you have heard of the vasculitis foundation? They have an annual conference every year, to my knowledge it's always in the U.S.. However, people travel from all over to attend. The leading docs in the field are usually present giving talks etc. Hundreds of people with WG attend. I myself have never gone, but would love to.
Marcy

[jola57]

I believe that there just was one this summer.

[Terri]

If any of you get a chance......check out Front Page | Vasculitis Foundation
This week was Vasculitis Awareness week. I submitted an article to my local newspaper as I did last year.
It makes you feel better just to let people know about these diseases that seldom get talked about.
If you join the vasculitis foundation you also get newsletters. I read them from cover to cover, over and over. It contains info that we all need to read and offers so much help. There is no excuse to suffer mentally if you just reach out.
Call me if you are ever in Pennsyvania, U.S.A. I would love to meet with other "Weggie's" We are special people with special needs.