- Another flare???
- I need Advice!
- Quite well now - why did I get it in the first place?
- Todays Appointment
- Genes
- Vit. B12, Energy and Immune System
- Questions for Dr Seo
- Alternative Treatments?
- Water Retention
- Working Towards a Goal...
- a whining thread...
- Another Q Regarding Employee/Employer Relations & Weg's:
- Throat Closing
- What test results should we be asking for?
- Immune System & Vits/Supps
- Weird weight loss
- Biopsy results
- Update on my hooter
- Healthy Person Disease
- Back at Chapel Hill
- Deserted by Docs and feeling wary!
- Those whose sinuses/nose was effected...
- in the hospital
- Just an update on my situation.
- Pressure sores.
- 4th JULY
- Anyone have kidney pain? Tingling in legs?
- Had a nice visit at Cleveland Clinic
- Achy legs. Next to impossible to stand
- Dissapointing appointment
- Doctor didn't do Biopsy
- How do you know?
- I am an idiot
- Study: 4 weeks of rituximad works as well as 18 mos. cyclophosphamide
- Forgot to ask re hearing loss/ringing...
- Five Years in Weggie Land
- one year of being a weggie!!
- Am I immune supressed???
- Was your hearing affected? Question regarding ringing:
- Your Advice
- Bleh
- My nephro said the big R word yesterday!
- Trouble reading posts.
- eye problems
- Not sure im strong enough...
- W.G. and Microscopic Polyangitis
- We are home again TAKE 2!
- No insurance and H1N1- WG connection?
- How has Weg's affected you working/going back to work?
- For those with "saddle nose"
- The Big "R"
- Do you/have you taken Azathioprine (Imuran)?
- Rtx Half-Life: Another Wrinkle
- Young and have WG
- lithotripsy
- update on Lisa Marie
- Follow help needed regarding earlier "Sinuses" thread:
- update on John
- Those whose sinuses are affected:
- help!
- Weight-loss instead of weight-gain (meds or Weg's?).
- Is it Wegners?
- My foot is swelling like crazy!
- Sinuses affected - nose dripping like CRAZY!
- Indigestion/Heartburn
- For the Ladies...
- 7 signs your lungs are in danger
- Dad is finally coming home!
- Avoiding People and Places while Immuno-Suppressed
- What Does "Osteopenia" Really Mean?
- update on my husband...
- leg issues
- Anti-embolism stockings
- Living with WG (how you want to)
- VCRC Enrolling Participants for Genetic Study at 2 New Centers
- Healing Question
- Facebook anyone?
- help me please
- Pred vs WG pain
- diverticulitis anyone?
- Who are the 10%?
- C ANCA blood test
- Recenlty diagnosed with a couple of questions:
- Elevated ESR
- side effects
- Ear Problems?
- I feel like im getting no where!
- Rituximab Delayed
- Blood Blister
- going away
- Bit worrying...
- wbc
- Reminder
- Official Name Change
- Update on my dad!
- Rituxan Injection
- Was any one in the milatry
- Weggies outside this forum
- Kidney Involvement
- Recurring hoarseness
- granuloms in the uterus
- Just a cold?
- Just some news
- Sternum discomfort
- Phil do you realy believe that
- Plz Mention everyone who r From New Delhi India
- Chapel Hill, North Carolina anyone?
- infections!
- working with WG good or bad idea
- For the Ladies
- Hi ! New To the forum
- Low Body Temperature
- RTX versus Cyclophosphamide?
- Near Death Experiences
- Recently diagnosed brother has lost feeling below his knees
- The big R
- Lab results two weeks post rtx infusion
- pains
- A central line
- mtx itching
- Have question?
- Mycophenalate
- Confused ... moreso than ever
- Update on my dad (how do we handle depression?)
- Drug Shortages
- Back in the hospital
- MPO positive
- Colostrum
- Confused
- Stenosis
- Baseline Symptoms?
- Update on my dad
- what are they looking for in your nose to diagnose you with Wegners.
- Wbc
- How many years have you lived with Wegners?
- Differnece between P Anca Vasculitis and Wegners?
- Maternal Hellps Syndrome
- First Symptom
- Easter in the hospital
- Patient Symposium
- New Name for WG
- cytox
- new to site
- Anyone from Honolulu with WG?
- 2nd Rtx infusion today - went well
- FDA approves Rituxan for Wegener's, MPA
- What to Expect...
- Vasculitis Awareness Month Auction Needs Stuff
- Update on Lisa Marie
- Looks like Rituxan is in my future
- Wegener's on House
- Research due to a cluster of wegeners diagnosis in South Wales, UK
- Cataracts and Prednisone
- Thought I'd pop in and say hi
- Prednisone Side-Effects
- Hemosiderin Laden Macrophages in the lungs - anyone have experience
- lungs
- testicle-concerns
- Over medicating?
- Local Vaculitis Foundation
- Journal
- Remission - woo hoo!
- Getting Sick while on Cytoxan
- Posting from the infusion center - they have WIFI!
- Thinking...is there any famous person with WG?
- Scared..
- little family support
- Feeling down
- A Brick Wall During Treatment
- Cleveland Clinic - Vasculitis Foundation Symposium for Patients, Family & Friends
- Update on Chris
- Vericose veins
- Nose bleed!!
- I have an adrenal question?
- Just got word that I'm Rituximab approved!
- Liver?????
- How to help someone newly diagnosed and being advised to see a natural doctor
- drug strengths?
- Fluid Retention
- Crahsing... Part of the diesease?
- Oh no! Catching my 1st cold!
- What I have learned from having Wegener's granulomatosis?
- Scared!
- Numbness & Tingling... new
- Methotrexate to induce remission
- Got my Packet from Mayo
- WG & Genetics
- Update on JanW
- Saddle Nose
- Update from Mayo
- Cleveland Clinic - advice please
- some more questions
- Woke up with excruciating earache tonight.
- random wegners questions of the day...
- Methotrexate
- Is The Immunosuppressant Medication You Are Taking Preventing Further Hearing Loss?
- Tour de Cure Tour
- Worst things about having Wegener's granulomatosis
- Finally!!!
- still undiagnosed and annoyed
- Weather and Weggies
- P-anca positive
- Prednisone and Diabetes
- Just want one good day
- GP not being fair...
- Caregivers
- Replacement med for Bactrim/Sulpha-based products
- Questions for Dr Seo
- Low Grade Fevers
- Having children when diagnosed with WG
- Ramifications of ICU Treatments
- Cure Together Website
- Crusting in the throat
- What causes Wegener's Granulomatosis?
- Just got the go-ahead from Dr. Langford to start Rituximab
- Advice for a novice please?
- Neti pot question (really gross, sorry)
- Joint Pain
- ANAC and tissue sample confirmation
- Hot flushes
- Update on pwc51
- Psyborg Update
- Lung problems
- Getting ready for Mayo
- Flare-ups?
- Leading-Edge Research & Strategies for Living with Vasculitis Symposium
- Lilypony update
- Roberta
- Physical fitness for Weggies
- What is crusting?
- Tracheal stenosis and loss of voice with increased soa
- Should I have concerns about possible dental surgery?
- Best news since diagnosis:
- How many have had intubation or trachetomy as part of their treatment?
- Specialist question
- An infectious lung question
- Metal
- Sinus problems and confusion? :/
- Funding for research on Wegener's disease?
- I'm so complicated...
- Online Research Study by VCRC
- Pesticides Linked to RA, Lupus Risk
- Input needed
- My Cousin diagnosed with Hypereosinophilic Syndrome
- WG Specialist in Southern California
- Anyone use Apple cider vinegar and honey for holistic treatment?
- Atrophy of the spleen and WG
- Should I be taking estrogen replacement?
- anca vasculitis website
- Prednisone Acne??